life

Christmas: pressures and perspective

So, I was 'voluntold' yesterday by my youngest that 'we' were providing the vegan gingerbread house kit for her and a friend for the class contest on Friday. Ummm... okay? 🤣 I love that she knows I love to bake so assumed I'd be happy to do it. Happier that it doesn't occur to her… Continue reading Christmas: pressures and perspective

life

Moment of truth: Opinions?

Okay, here are two versions of our fully decorated Christmas tree, using the handmade decorations I presented in my last post. It only took six trips to the store for lights, some creative sawing and duct-taping to get the star on, and four days of decorating, undecorating then redecorating. Who says MS has screwed up… Continue reading Moment of truth: Opinions?

life

Crafts and chronic illness: A Handmade Christmas

As I said in my last post, crafts keep me sane and help me feel productive in my spoonie lifestyle. So, together with my desire to rid our household of plastic as much as possible, I decided to make the decorations for our tree this year. Oh, an important detail: Our youngest requested that I… Continue reading Crafts and chronic illness: A Handmade Christmas

chronic illness, MS

Crafts and chronic illness

I recently had some surprising reactions to the fact that I've been playing around with watercolours and calligraphy. Surprising, as in not terribly positive or supportive. So, partly to get it out of my head but more importantly to share the BEST little craft for us spoonies, I decided to pass on another discovery. First… Continue reading Crafts and chronic illness

MS

Raw

I need to know Do other MSers feel it too? A sudden rawness Burning Tingling In the tongue Lips Palms of hands Soles of feet Eyelids MS? Is it the myelin being destroyed By my own cells? Most uncomfortable Anxiety-inducing Go away now.