chronic illness, MS

Crafts and chronic illness

I recently had some surprising reactions to the fact that I've been playing around with watercolours and calligraphy. Surprising, as in not terribly positive or supportive. So, partly to get it out of my head but more importantly to share the BEST little craft for us spoonies, I decided to pass on another discovery. First… Continue reading Crafts and chronic illness

MS

Raw

I need to know Do other MSers feel it too? A sudden rawness Burning Tingling In the tongue Lips Palms of hands Soles of feet Eyelids MS? Is it the myelin being destroyed By my own cells? Most uncomfortable Anxiety-inducing Go away now.

chronic illness, life, MS

Some people – Practice kindness

I had a really wonderful then upsetting experience yesterday. I was in the ‘accessible’ lineup at the grocery store - simply because it was the shortest line, I’m still totally mobile. I left my cart to get another item and when I came back the cashier had put up her ‘closed’ sign but said I… Continue reading Some people – Practice kindness

chronic illness, MS

Not all hugs are loving: MS awareness

It starts with a stitch A few deep breaths Then you're knitting my ribs together With barbed wool The front Then the back Swirling into my abs Then my lower back A corset of pain The cat the cow The cat the cow Stretching every way for relief Breathe Distract It's just a physical thing… Continue reading Not all hugs are loving: MS awareness

life, mental health, MS, writing

Bathroom Renovation Part 2: It’s a Bathtub?

I am sure there are things that can't be cured by a good bath but I can't think of one.” ― Sylvia Plath, The Bell Jar It's a bird... it's a plane...it's a... tub on my front lawn. I should have sat in it. It didn't take long to rip out the old slime tub.… Continue reading Bathroom Renovation Part 2: It’s a Bathtub?