chronic illness, life, Poetry

Voodoo Doll: MS Awareness

Huge stakes pierce my heels Burning red hot fire Millions of minuscule knives Flay the insides of my feet A giant vegetable peeler slices off The bottoms * I'm sorry to those I squashed Those I looked down upon From any temporary high ground I believed I held I am your voodoo doll And you… Continue reading Voodoo Doll: MS Awareness

chronic illness, life, MS

Some people – Practice kindness

I had a really wonderful then upsetting experience yesterday. I was in the ‘accessible’ lineup at the grocery store - simply because it was the shortest line, I’m still totally mobile. I left my cart to get another item and when I came back the cashier had put up her ‘closed’ sign but said I… Continue reading Some people – Practice kindness

chronic illness, life, mental health

Milestones and Reflections

At the beginning of June, I celebrated the first year of my blog. It was a huge step for uber-private me last year but the response once I finally faced my fear and hit publish was unreal. I can't believe I have over 500 followers. More importantly, I can't believe the support I've received and… Continue reading Milestones and Reflections

life

Bathroom Renovation – Part 5: Lessons learned from hiring a ‘designer’

Remember The Gong Show? Hilariously innocuous in its innocence. Beware the reality when you take on a home renovation. I wanted my next and last post to be the final reveal, since this project started in January. But after 11 weeks I finally kicked them all out, tired of being a hostage in my house.… Continue reading Bathroom Renovation – Part 5: Lessons learned from hiring a ‘designer’

chronic illness, MS

Not all hugs are loving: MS awareness

It starts with a stitch A few deep breaths Then you're knitting my ribs together With barbed wool The front Then the back Swirling into my abs Then my lower back A corset of pain The cat the cow The cat the cow Stretching every way for relief Breathe Distract It's just a physical thing… Continue reading Not all hugs are loving: MS awareness