chronic illness, Health, life, mental health, MS

Exercise, the DIY DMT

It’s been a long six and a half years since my MS diagnosis, seven since the relapse that made teaching impossible, but I’ve healed more than I thought possible back in 2015.

I attribute my healing to various things, namely a healthy, stress-free lifestyle, low-dose Naltrexone (LDN), a healthy, mostly vegan diet, circadian fasting (more on that later), time in nature and in my garden, and a great dose of luck that this monster isn’t as aggressive for me as it is for some people.

The biggest factor in the last year though, has been exercise. I thought they were lying. When you barely have enough energy to breathe, how can you possibly exercise? Or, when you do have the energy, you go as hard as the ‘old you’ could manage, then end up in bed for days, useless as braces on a duck.

Much nicer with no braces.
Photo by Skyler Ewing on Pexels.com

So I decided I needed to be methodical about it, and make a commitment to myself to spend half an hour a day using it before I lose it. Never mind MS, age starts gnawing away at the natural strength you used to take for granted and it’s a slippery slope. If I can binge watch Survivor at the end of the day, surely I can carve out half an hour for exercise.

Remember the movie About A Boy? Hugh Grant’s character was a rich layabout who organized his days in thirty minute increments. It became wisdom to me when I was first on disability, and now at least one of those thirty minute chunks is devoted to exercise.

If the weather permits, my exercise is walking outside because it also checks off another important part of my morning routine which is at least 30 minutes of sunlight (or a reasonable facsimile thereof-gray skies are still beautiful). I’m all about efficiency!

Otherwise, I either ride the recumbent bike or do yoga or pilates on YouTube. There are some amazing channels out there, I’ll link a few favourites at the bottom. The trick is, pick the beginner videos. You have nothing to prove except a commitment to consistency.

I know, I know, you used to be able to handle intermediate or advanced, but remember the braces on a duck? While incongruous, it speaks nothing to the true pain you can cause yourself by trying to do too much too fast. Maybe we should picture a tortoise with a headband instead. Since I’ve been limiting myself to gentle but CONSISTENT exercise, I have finally been able to maintain an exercise routine and start to see and feel the benefits.

the tortoise→ MS Warrior

the hand → MS

The tortoise might be caught but he never stops moving!

My newer, all-time favourite paid exercise program, that I do two or three times a week because it always leaves me with a smile on my face, is BodyGroove. With catch phrases like “you can’t do it wrong” and “do whatever feels good for your body”, they have turned exercise into a fun way to connect with your body and dance like it’s 1988.

For each song, they introduce three different rhythms that are simple enough for you to interpret however you want but sooo good for your cognitive health. Check out these articles for all the benefits dance provides.

https://www.news-medical.net/health/Is-Dancing-Good-for-the-Brain.aspx https://www.sciencedirect.com/science/article/abs/pii/S014976341830664X

I’m not affiliated in anyway, I just think it’s a great program for anyone chronically ill, as they have all sorts of people demonstrating and showing how much you can do even sitting down. You don’t need any experience but I grew up dancing in a fairly serious way so I love that I can reconnect with that previous iteration of myself, even on days when the MonSter makes my movements sluggish and difficult.

On my darkest days, stuck in my bed, I dance in my head like I used to as a child. With strength, freedom and passion. Now, even on my mediocre days, I can push myself to do it because “you can’t do it wrong”. You need to move your body, so why not groove your body?

It was my oft-mentioned, well-respected naturopath, Dr Pamela Hutchinson that gave me the idea for the title of this post. Dr Pam believes that exercise should be considered a DMT(disease-modifying therapy), and my neurologist agrees that exercise is the single most important thing you can do to fight MS.

They’re not lying. Move your body, but gently. If you can’t commit to half an hour, commit to five minutes and build up from there. The important thing is to get or keep moving so we don’t lose any more of the mobility and strength that we still have. Fight the fight. You got this!

Top 5 exercises for the chronic illness warrior

  1. Walk – in nature or at least outside
  2. Yoga – Jessica Richburg https://youtu.be/zA5oxYvIx0c – Yoga with Kassandra https://youtu.be/6hZIzMpHl-c – Yoga with Adrienne https://youtu.be/v7AYKMP6rOE
  3. Pilates – Move with Nicole https://youtu.be/NyP_waVgL1w
  4. Recumbent bike – with a nature meditation video https://youtu.be/tck7E11SdR8
  5. Body Groove https://www.bodygroove.com

Amanda ❤️

chronic illness, garden, gratitude, Health, life, mental health, MS

Garden Tour – May 2021

Well, hello there! It’s been… a while, to say the least. The blogging and writing has been overtaken by the garden. It keeps me busy and (mostly) out of trouble but doesn’t leave a lot of time for other pursuits like writing. But that’s a positive, as it keeps me moving – “Motion is Lotion”, as one of my favourite MSers loves to say.

It has certainly been a peaceful and hopeful place to spend time during the pandemic, and I am grateful for that every single day. The pictures really don’t do it justice, and things are just starting to come together after years of redesigning and refiguring, but I hope you can experience even a fraction of the joy that I find here every day.

Much more interesting than the sloped lawn that was here when we moved in.
Twelve years later and the beds have finally stopped moving. 😀
Our driftwood ‘tree’ is a favourite climbing post for the cat but is sadly getting a bit wobbly as it slowly decays. Smudge could get quite the surprise one day soon!
view from the bottom of the garden where we mostly sit

The Working Garden – The Vegetables

As you see, I like to mix it up and stuff many different vegetables into a container or raised bed. I’m not sure it’s the most efficient or productive method but I like the variation. Not only does working in the garden keep me physically and mentally healthy, growing our own food has been a huge factor in getting my symptoms under control.

The Orchard – apples, lemon, kiwi, onions, radishes, kale and kohlrabi
cucumbers, beans, dill, celery, cherry tomatoes, peppers and potatoes

Gardening is a lot of work, and can become overwhelming if it gets away from you. I’m very lucky that my husband and I share the passion and the work. Adding a chronic illness to the mix can make it seem impossible on some days, with crushing fatigue, dizziness, pain and brain fog making the simplest tasks insurmountable. Those are the days to rest and enjoy, meditate and reflect.

Just like housework, the weeds will always be there and there is always more to do than time to do it. But that’s a gift. And, like everything in life, it’s all about perspective and what you choose to focus on. On my good days, I move slowly, take lots of breaks and hydrate constantly. On my bad days, I focus on what’s blooming, what’s growing well, and the overall beauty of the garden. There is always something to appreciate.

Wishing you peace, love, hope and joy, today and every day.

Amanda

P.S. It’s always interesting to see the changes from year to year. So, here’s the May Tour from 2020. Also the Vegetable Tour.

garden, Health, life, mental health

Deer Decimation 😣

Well, yesterday was DD day at our house. Apparently, the deer around here read WordPress, and my May Garden Tour post was an invitation. Whoops.

They ate the kale…

They nibbled the potatoes …

And snarfed ALL but two of the bush beans!

And that’s not all…

So when the deer come chomping, the gardener(‘s husband) builds a fence.

Fingers crossed…

But there’s always something positive happening in the garden. I’m thrilled that this method of interplanting worked. I planted radishes and carrots together so the fast-sprouting radishes shade the finicky slow-sprouting carrots until they germinate. Now I’ve pulled the radishes and the carrots are perfectly thinned and ready to keep growing.

Radishes, carrots
There’s always something positive in the garden.

❤️Amanda

chronic illness, Health, life, mental health, MS

May Garden Tour

Aloha! Since my backyard urban farm in-development has taken up all my focus and energy and I haven’t been writing at all, I thought I’d share photos of how I’ve been staying busy.

Honestly, it has become a full-time job. There are days when the MonSter awakes and I drag myself out of bed hardly able to face the thought of all the tasks calling for attention. But I make myself get out there every day at least for 20 minutes. Usually that ends up with me outside all day.

Besides the obvious advantages of all that vitamin D and fresh air, I know that digging in the dirt is helping rebuild my immune system and my gut microbiota. So even on the toughest days, I rest a lot but I make myself do the lighter tasks. The trick is to not focus on everything that needs to be done but to put the blinders and just do one, small, task.

Anyway, enough of that. Have a wander through our garden.

Food garden, Lavender , buddleias, wallflower, chives, irises, onions, beets,
10 years ago this was a grassy hill.
Chives,   Snapdragons , lilies ,  succulents , irises,lavender , lilac, buddleia
All the boulders, dirt and driftwood were hauled in and set by hand (and occasionally a rickety dolly with flat tires) by my very determined and creative husband. Those are the boots he wore out during the first few years.
Lilac, iris, lupin,  cosmos, daisies, Corsican mint
We obviously don’t play much bocce ball. 😏
Angelica,  alpine blue,  garden steps
One of my favourite statues because I bought it with a gift certificate from one of my grade one classes.
Rockcress, alyssum, lavatera, wallflower, buddleia, lavender ,garlic, kale, lithadora, ornamental  oregano , snapdragons, iris, strawberries, peonies
The oldest part of the garden. We found the sign buried when we moved in. The alyssum(bottom) reseeded itself from last year.
Petunias, onions, rose, garlic
Pallet deck at the top of the garden.
Hopefully one day a greenhouse.
Lemon, blueberry , kiwi,  artichoke, cucumbers, beans, onions, garlic, carrots, dill, nasturtium , leeks, petunias
Top garden – the Mediterranean garden
Lemon tree, artichoke, kiwi vine, blueberries and apple trees in the distance.
Oh, and that pepper in the tub is called a “ring of fire”. 🤣🤣🤣
Artichoke bud, food garden
Here comes an artichoke!
Daphne, Angelica, garlic, peonies, buddleia, Rosemary, lupin
Mid-garden
New vegetable bed growing zucchini, cucumbers, carrots, radishes, leeks, kale, dill, kohlrabi and buckwheat. Little bird was a Mother’s Day gift from my girls.
New vegetable bed beside the rhubarb and
the Nelly Moser clematis(far left) and anemones (right) finally flowering!
Instead of being chowed down by the deer. 🤞🏻👩🏻‍🌾🤞🏻
Apple tree bed growing onions, beets, potatoes, kohlrabi, radishes and carrots.
View from the apple tree bed
Barbie skinny dipping with a 20 year old bath toy.
Hmmm…that sounds strange… 😳
View from the bottom, the newest part just finished this year. This is where we mostly sit because it’s cool and shady beside the cedar hedge.

I know not everyone is fortunate enough to have a yard to garden. But even a small pot on a windowsill can grow parsley, basil and cilantro. Food security is a serious issue that has finally been brought to the forefront of people’s minds because of the Covid-19 situation. Start small and grow your own!

Alright, thanks for joining me. I didn’t even get to the vegetable beds by the house, but I’ll leave that for another post.

Take care, stay calm and stay safe. And garden!

❤️ Amanda

life, mental health

Learning to Be

The world has stopped. The unthinkable has happened and we’re in crisis mode, trying to get our heads around this ‘new normal’.

I’ve been here before.

No, not exactly like this, obviously. But almost five years ago, my world stopped when I finally admitted I couldn’t teach anymore. I’ve been adapting to my new normal ever since. It’s been a bumpy ride, but there have been many surprising blessings as well.

Learning to be. This is a big one. We are so inundated with messages telling us we need to be doing something all the time. There’s a culture of busy-ness, where the more you’re doing is like a badge of honour. When you have a chronic illness, that’s not really an option because the fatigue, among other things, is so killer that You. Just. Can’t.

So you spend a lot of time at home, sitting around, isolated, without a whole lot of options for entertainment. Sound familiar? I’m sure it’s a new experience for most healthy people, and it can be uncomfortable just sitting in your own skin sometimes. Or maybe that’s just the MS. 🤔

But just being, instead of always doing can be a wonderful opportunity to get real with yourself and figure out what’s really important. We’ve been conditioned to believe we need to be working, be productive, be entertained, be adventurous, be travelling , be consuming, be socializing.

We’ve forgotten that sometimes it’s important to just BE.

When you stop doing and sit quietly with yourself, your mind has space to process. This is why meditation has become so popular. But you don’t even have to be that organized about it. I’m not knocking meditation in any way, I’m just suggesting that you pay attention to whether you take any time during your day to stop doing and just BE.

Staring at nature is my go-to for times when I need to stop and be for awhile, even if it’s just out the window, or the nature channel on TV. I guess that’s technically doing something but the mental health benefits outweigh any slicing of that proverbial hair.

We’ve been running on the societal treadmill for so long that doing nothing, just BEING is a difficult thing for many people right now. I get it. Like with anything though, a shift in perspective can change this strange situation we’re finding ourselves in, into an opportunity to examine our values and decide if we really want to go back to the “old normal”.

As much as I miss teaching, I am grateful every single day for my many blessings. Learning to be comfortable with just being and not doing all the time has helped me enormously in accepting my new normal. I hope it helps you too.

Just be.

Hummingbird in flight feeding
Look what you can see when you stop doing for a few minutes. Just be.
Photo credit: Amanda L. Callin

❤️ Amanda