chronic illness, MS

Crafts and chronic illness

I recently had some surprising reactions to the fact that I've been playing around with watercolours and calligraphy. Surprising, as in not terribly positive or supportive. So, partly to get it out of my head but more importantly to share the BEST little craft for us spoonies, I decided to pass on another discovery. First… Continue reading Crafts and chronic illness

MS

Raw

I need to know Do other MSers feel it too? A sudden rawness Burning Tingling In the tongue Lips Palms of hands Soles of feet Eyelids MS? Is it the myelin being destroyed By my own cells? Most uncomfortable Anxiety-inducing Go away now.

chronic illness, life, Poetry

Voodoo Doll: MS Awareness

Huge stakes pierce my heels Burning red hot fire Millions of minuscule knives Flay the insides of my feet A giant vegetable peeler slices off The bottoms * I'm sorry to those I squashed Those I looked down upon From any temporary high ground I believed I held I am your voodoo doll And you… Continue reading Voodoo Doll: MS Awareness

chronic illness, life, MS

Some people – Practice kindness

I had a really wonderful then upsetting experience yesterday. I was in the ‘accessible’ lineup at the grocery store - simply because it was the shortest line, I’m still totally mobile. I left my cart to get another item and when I came back the cashier had put up her ‘closed’ sign but said I… Continue reading Some people – Practice kindness

chronic illness, life, mental health

Milestones and Reflections

At the beginning of June, I celebrated the first year of my blog. It was a huge step for uber-private me last year but the response once I finally faced my fear and hit publish was unreal. I can't believe I have over 500 followers. More importantly, I can't believe the support I've received and… Continue reading Milestones and Reflections