I need to know
Do other MSers feel it too?
A sudden rawness
Burning
Tingling
In the tongue
Lips
Palms of hands
Soles of feet
Eyelids
MS?
Is it the myelin being destroyed
By my own cells?
Most uncomfortable
Anxiety-inducing
Go away now.
Raw
I need to know
Do other MSers feel it too?
A sudden rawness
Burning
Tingling
In the tongue
Lips
Palms of hands
Soles of feet
Eyelids
MS?
Is it the myelin being destroyed
By my own cells?
Most uncomfortable
Anxiety-inducing
Go away now.
Walk a Myelin* My Shoes 
OMG Amanda, me! The mouth part is the worst, I am so depressed about it, and yes, it’s anxiety inducing.
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Thanks Karen. It always helps to know you’re not alone.💕
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My mouth pain turned out to be trigeminal neuralgia, in which one nerve in my face went berserk, like a viking berserker. It’s easily fought off by meds, so no swords are needed to fight this berserker!
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I’m glad that worked for you. It’s not pain so much as a very strange, disturbing sensation that comes and goes. So weird.
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That must be so difficult to cope with Amanda, so challenging on a daily basis. Thinking of you and how your overcome your obstacles sharing posts which contain so much positivity and outside of self focus! Hope your son has settled into college life.
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Thanks so much, Marie. He’s settling in really well, and we’re adjusting to not having him here but counting the days until he comes home! 💕
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You’re welcome Amanda, I know that feeling, same story over here! Xx
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Love u
Sent from my iPad
>
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Love you too!
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sensitivity in so many areas- face pain from clenching my jaw. that is worse after had any teeth filled and the bite is altered.
Just lost a front crown and deciding what to replace it with.
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Ugh, tooth pain. I just had my first experience with getting a crown. Hope it goes well for you, whatever you decide.
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I am so sorry for my late comment Amanda.This was a great post I tend to have a lot of that tingling/burning sensation in my feet. It is an awful feeling and so frustrating! I have found when I either type or write too much, my fingers start feeling tingly. The things we deal with living with MS are so difficult, but somehow we manage. I hope you are having a pleasant weekend Amanda!
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No worries at all, Alyssa, I know how it goes. Thanks so much for your comment, it really helps to know I’m not alone – though I obviously wish neither you nor anybody else could relate. Happy Sunday from rainy Victoria! 💕
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Over sensitivity- I can feel uncomfortable with ridiculous things- nails get to long.
Underwear too tight🙀
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That’s why I don’t wear any! 😱😉💕
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