chronic illness, life, MS, writing

Grant, the cabbie has the cure!

I wake up slightly hungover and more than ready to get home. Strung out after four days facing my own anxiety and the fact that some women never leave high school, I need some serious solitude. I phone a cab and wait outside in the crisp morning air, dying for coffee.

The cab pulls up and the white-haired driver gets out. Red suspenders hold up dirty brown pants and a stained blue dress shirt stretches over an enormous belly. Sparkling blue eyes magnify curiosity behind enormous glasses.

“Where are you off to this fine morning, young lady?” He peeps at me in the rear view mirror and tips his grimy white baseball cap.

“Home to Victoria. I missed my bus yesterday so I was staying with a friend.” I’m taking shallow breaths because the air in the cab is custard thick with that sickly-sweet old man smell. It doesn’t feel right to open the window. I don’t know why.

“And what do you do in Victoria, young lady?”

“Well, I’m a teacher by trade but I don’t teach anymore. Now I’m a writer.” There, I said it without air quotes. Yay me!

“And why is it that you no longer teach, may I ask?”

“I have MS. I would love to —”

“I know how to cure that. It’s one of two things.”

Jesus. “Oh yeah?”

“Absolutely. It’s either a yeast overgrowth or a magnesium deficiency.”

Haven’t heard those before.

I try to stare out the window as he pontificates nonsensically but he keeps eyeballing me through the rear view.

He tells me he sells essential oils and I want to laugh, but I can barely breathe.

The longest ten-minute cab ride finally ends. He hands me a card with the words ‘wellness advocate’ under his name before he gets out to open the trunk.

He lets me get my own suitcase as he starts telling me about his prostate. Seriously. I finally cut him off and say I need coffee. He makes sure to tell me that he’s going to get coffee too, but in the car.

I’m sitting in Starbucks with my headphones on and see him drive by, glasses peering through the window. Several minutes later, I spot him in my peripheral vision. He’s come inside and he’s trying to get my attention. Oh for the love of all that’s holy.

Thank god for technology.

**********************************************************************************

This is an excerpt from a short story I wrote after the writing retreat I went to in September. This dude just may pop up in my fiction at some point – who needs to make characters up when these kinds of people show up in your life? I wish my powers of description could do him justice, he truly was something else. His card is still on our fridge – haha!

Just to be clear:

1) There is NO CURE for multiple sclerosis.

2) Warriors find it really annoying when people suggest they know how to fix us, if we just follow their latest fad. Most of us have tried many, many different therapies and medications. MS is a complex disease that affects every person in a different way on a different day. If you have something to suggest, I’m all ears – if it’s done with sensitivity and respect.

Do you have stories of people giving you the magic cure? I’d love to hear them!

Have a wonderful week!

❤️ Amanda

gratitude, life, writing

Blogger Recognition Award

Happy Thanksgiving to my fellow Canadians! Continuing on the theme of things to be grateful for, I have to thank Ruth at Melanin Talks for nominating me for The Blogger Recognition Award. If you haven’t checked out her blog yet, head on over there for interesting posts from a 20-something Congolese student living in the UK.

In the four months since I started blogging, I have faced my fear that I could scoop my thoughts out of the pea soup of brain fog that invades my life most days. I have also surprised myself and been wonderfully surprised by the reaction and reception of the blogging community.

I have read so many interesting posts, found a ton of amazing blogs and I can honestly say, I have made better connections with some people online in four months than I have made in person my whole adult life. The blogging community rocks!

How it all began – I explained it all here.

Advice to new bloggers

1) Quality not quantity. Post regularly but don’t get caught up in the numbers game. As fun as it may be to watch the stats grow, keep it in perspective. Remember that all things worth doing take time to develop, and doing something well is a process. Not to mention, there is life outside of social media, a fact we need to remind ourselves of more and more.

2) Connect with other bloggers. There is an amazing, supportive community of bloggers ready to welcome you but, just like in life, it has to go both ways. If you want people to be interested in your content, you have to give some love too.

The Rules:

  • Thank the blogger who nominated you and provide a link to their blog
  • Write a post explaining how your blog got started
  • Give 2 pieces of advice to new bloggers
  • Nominate 15 other bloggers you feel deserve some recognition
  • Comment on each blog nominating them, providing the link to the post you created

I decided to pick a mixture of newer blogs, to give those people a boost, and more established blogs that might not need the recognition as much but I feel are important to share.

Writing and poetry

https://poetryforhealing.com/about/

https://daisymae874.wordpress.com/about/

https://poetryfromtheinkwell.wordpress.com/2018/10/07/a-mathematical-statement-senryu/

https://blindwilderness.wordpress.com/aboutme/

https://lilhamilton.wordpress.com/about/

Chronic illness

https://msluckyduck.com/about/

https://msgracefulnot.com/who-am-i/

https://hellofibroblog.wordpress.com/

https://msmsmystoryfightingmultiplesclerosis.com/about/

https://katieslifewithms.wordpress.com/about/

Mental health

https://recoverurself.wordpress.com/about-me/

https://theblackwallblog.wordpress.com/contact/about/

https://insane100.wordpress.com/2018/09/07/men-wont-talk-about-depression-and-its-literally-killing-them/

https://descantsoncivilisation.wordpress.com/2018/10/06/tired-of-fighting-unlock-powerful-strength-in-being-motivator-cognizant/

https://ashipofmyownmaking.wordpress.com/2018/10/08/the-frightening-decline/

Have a wonderful week!

❤️ Amanda

life, Poetry

Endings

Endings, beginnings, life

Endings

Why are endings so hard?

We should be masters

Everything ends.

Baby

First the womb

Then the breast

Or bottle, depending

Diapers

Soother

Stroller

Midnight snuggles

Elementary

Innocent imagination

Friendship without agenda

Playing with toys

Middle

Budding breasts

First period

First boyfriend

Hormone fights

This is the end of the beginning.

High school

Independence

Attitude

Virginity???

First view of future

Twenties

High school without boundaries

Knowing everything without knowing you know nothing

Veil lifting

First job

First love

First orgasm – don’t lie

Marriage

Wedding- so much planning, over so fast

Honeymoon

First house

Children

Births – miraculous torture

First steps

First words

Preschool

School years

Empty nest

Sad freedom

First view of legacy

Nostalgia

It all went so fast

Retirement

Adventure, at first

Money, an issue

Health, sneaks up

Full circle

Decisions

Confusion

Hand over

The end.

Beginnings are endings. Endings are beginnings.

Endings, beginnings, life

❤️ Amanda

life, writing

Camp NaNoWriMo – Yay Me!

Toot toot! I normally only post once a week, but I had to share. Despite that crazy old gal Life tossing all sorts of obstacles in my way this month, I managed to succeed at the word count goal I set for myself for Camp Nanowrimo.

I had no idea how many words I would need to finish my current work in progress. That’s some weird writer science that writers can decide how long their project will be and actually hit that target. I’m still in the amoeba stage as a writer so I had no idea.

I wanted to set a manageable goal to increase my chances of success (lower that bar, baby!), so instead of the suggested goal of 50,000 words, I set mine for 30,000. I didn’t manage to write every day, and I had to pull a late-night writing sprint last night to give myself a real shot, but I did it.

I’m almost finished the first draft, and I’ve gotten into a more regular writing routine. I’m excited about the shape my project is taking and I’m motivated to get this puppy done by the end of August. That’s all I hoped to achieve and I have to say it feels pretty damn amazing!

Other exciting news that happened almost at the same time – I got my 150th follower! I had set a flexible goal of seeing if I could reach 150 by the end of the summer, to be there already made my day. Thanks incurable dreamer for making that happen! You should check out her blog, she shares some amazing posts.

Thank you so much to all my followers, anyone who reads a post, and those who take the time to comment. I was so afraid to dip my toes in this pool, and it’s the best thing I’ve done for myself in years. I have already met amazing people online that I consider friends and it’s cathartic to share this journey that used to be so isolating and lonely.

Mille mercis! Danke Schon! Muchas gracias!!!

❤️ Amanda

EDIT: Don’t ever hit the disconnect on your Facebook profile in your wordpress account, even though wordpress can no longer publish posts to your profile. I lost almost half my followers by doing that, and am slowly creeping my way back up. 😩

 

Book recommendations, MS, reading, writing

Writing: From Phobia to Freedom

Any writer is a reader first, and I’ve always been an avid reader. However, when it comes to which books I read, like most things with the monster there are two parts of my life: before relapse and after relapse. Having RRMS, I’ve obviously had many relapses. I’m talking about the life-changing, brain-frying relapse that hit me in December 2015, before I had a diagnosis. That story is here. I’ll call that relapse Ralph.

Before Ralph, I was voraciously devouring the classics and literary fiction that make up my husband’s extensive book collection. He once dared me to read Clarissa by Samuel Richardson, a wee book of 1536 pages entirely written in letter format. Epistolary is the technical word, apparently. Sounds like a virtual urinal 😜. Clarissa ended up being one of my favourite books of all time. Don Quixote by Cervantes is another that seemed daunting but I loved so much I will make myself read it again one day.

Despite having a degree in French Language and Literature, I always hated writing and avoided university courses that had an essay component as much as possible. Give me a factual test any day, don’t ask me to articulate my thoughts in writing. I was wracked with paralyzing self-doubt that I could ever adequately express the thoughts bouncing around my skull. Or that the thoughts were even worth expressing.

When I was on maternity leave with our third child in 2010, I started my Masters and one of the first courses was statistics. I hear the collective groan, but I surprised myself by really enjoying it. Writing the initial essay was the first time my thoughts stopped bouncing and ordered themselves into words, then paragraphs, then into the very first A+ in my life. More importantly, the professor complimented me on how clearly and succinctly I had reasoned my arguments. Amazing what a difference a few words, and twenty years of experience, can make in a person’s self-perception.

Fast-forward to 2015. I hadn’t yet met Ralph, but I had been relapsing every six months consistently for five years, luckily always bouncing back completely. One of my favourite memories of my career is lunchtime in the staff room with certain colleagues. You know, the ones who speak their minds and the subject matter sometimes gets a bit bawdy but is always hilarious? Many lunch hours sharing stories and loud laughter with people I still consider dear friends, even if we hardly see each other.

Anyway, I shared some (not all, I was a grade one teacher, for Pete’s sake) of the more adventurous, sordid tales of my adolescence in the 80s, as well as the story of how I met my husband, which was also in the 80s as it happens. I had several people tell me, sometimes after staring at me wondering how I’m still alive, or with hearts in their eyes as I recounted my personal love story, that it sounded like a movie or I should write a book. I thought little of it, until that summer when… wait for it… I had a dream.

https://youtu.be/yM4e8GUP0Cs

Sounds stupid, I know. The first time I dreamed the title and the first line, I woke up and thought, weird, and moved on. Then I had the exact same dream the very next night. Always a believer in signs, I opened up a blank document and typed that first line. For the next six weeks, the story wrote itself, around 80,00 words, my imagination filling in the many places my memory couldn’t locate. It was an unreal, life-changing experience.

That project sat on my iPad until the following September, when the residual effects of Ralph’s visit forced me to face the fact that I could no longer teach. Reading has always been a loyal companion but I found that not only did the cog fog make reading really difficult, even holding a physical book took too much energy. Thank goodness for digital books and Bookbub!

All my brain could handle at that point were romance novels, and I had to face my own snobbery to the whole genre that had me, with the exception of a brief Danielle Steel phase when I was 18, too embarrassed to even go to that section in the library. There is a reason that romance represents such a large proportion of all books sold. People, okay mostly women, love a love story. For obvious reasons.

Spending so much time reading, I started noticing the formulaic nature of a lot of the books, not to mention some atrocious quality issues and that lead me to beta reading. I joined some groups on FB, read some interesting manuscripts, and finally felt brave enough to share parts of my manuscript with a few people, including one full exchange. I valued the feedback and wrote several more drafts but I really suck at rewriting. “Killing my darlings”? Yeah, I suck.

What sucked even more, was that even though I was proud of having written it, when I asked myself “What is this book actually about?” You know, that rather important question you should ask yourself BEFORE you write 80,000 words? I had no idea, really, and ‘it’s the story of how I met my husband’ is just, well, blah. While I will always love reading that story, and maybe someday I will rework it so it actually follows proper novel structure, for now it hibernates.

I’ve started a few other projects since then, but I usually get to chapter 7 or 8 and it fizzles out, or my brain decides to start a different story. My latest project has made it to chapter 11 because I finally decided to try outlining, and found some awesome books and resources from C.S. Lakin at Live, Write, Thrive. Thanks, Suzanne!

The other tip I have been making myself stick to is to Just. Keep. Writing. I’m a terrible perfectionist and will reread the same chapter 16 times, trying to fix it but unsure how. So, I’m not letting myself look back more than a few paragraphs each day until I finish the first draft.

To keep up the forward momentum I signed up for Camp NaNoWriMo for the first time starting July 1st, with a word goal of 30,000. It is really helpful to have a virtual writing group that is all working towards a similar goal. So far, I have written over 9,300 words and am enjoying getting into a more regular writing routine.

Launching this blog last month was a huge step in getting over the phobia of sharing my writing. I started this way back in November 2016, but didn’t have the nerve to actually share it until June 2018. Imagine my surprise when I finally launched and the Bad Writing Police didn’t show up at my door to confiscate my iPad. People were more supportive and encouraging than I could have imagined. Not to mention that I picked up almost 100 followers from that first post! Mind. Blown.

I thought I would be tapping away and sharing in solitude, happy if even one person from my personal life bothered to read my ramblings. And frankly, even if nobody followed I would keep going. That’s a lie. Knowing my words might have meaning to even just one other person is huge.

In light of my commitment to myself to #facethefear, in September I’m going to a writing retreat. I am equal parts excited and terrified. Sharing my writing with people face to face? Ack! I’ll let you know how that goes, it should be a great adventure.

Any other writers out there? I’d love to hear your stories. If you have a phobia about writing, I strongly encourage you to give it a try. Whether you choose to make up stories or write down some of your own, there is something magical that happens when you silence that inner critic and let your words flow; it allows you access to a part of yourself that perhaps has been hiding for too long. You don’t have to share it, just write it. You may surprise yourself.

Wow, this was a long post. Thanks so much if you stuck with me to the end!

Have a great week everyone!

❤️ Amanda


** A book series I recommend for romance, vicarious travelling and delicious food descriptions, is Laura Bradbury‘s ‘Grape’ series. Laura understands the Spoonie life better than anybody. She had a liver transplant last year for a rare, life-threatening autoimmune disease, and is making the most of her new lease on life. She recently released My Grape Paris which brought me right back to the six months I lived in Paris around the same time. They have villas to rent in France, too!