Category: chronic illness

chronic illness, healing, mental health, MS

The 7 Phrases That Spike MS Symptoms (And What to Say Instead)

Amanda, walkamyelinmyshoes

Wednesday morning.

 Brain fog so thick I couldn’t remember my daughter’s teacher’s name. 

My first thought: ‘My body is attacking itself.’

My second thought: ‘What if that phrase is making everything worse?’

So I decided to test it.

When I started saying ‘My body’s trying to get my attention’ instead of ‘My body is attacking itself,’ something shifted.

I stopped feeling like I was in a war.

I started getting curious. ‘What is it trying to tell me?’

I noticed a pattern. Every time I spiraled into ‘This is just going to get worse,’ my fatigue would spike within hours. 

Not because the disease got worse, because my nervous system did.

7 Most Common, Least Helpful Phrases, Reframed

1. “I’ll never be the same again” → “I’m becoming someone new”

2. “My body is attacking itself” → “My body needs guidance to heal”

3. “I can’t trust my body anymore” → “My body’s trying to get my attention”

4. “I’m a burden to everyone” → “I’m worthy of support and love”

5. “This is just going to get worse” → “No one knows what the future holds”

6. “I should be able to handle this” → “This is hard, and I’m doing my best”

7. “If I just try harder, I can beat this” → “Healing requires patience, not force”

Why This Matters (More Than I Realized)

I used to think my thoughts were just… thoughts. Turns out, every time I told myself “I’m a burden” or “This is just going to get worse,” my body was listening. And responding.

These phrases flip on the stress response, the same system that would kick in if I were being chased by a bear. Except there’s no bear. Just me, sitting on my couch, flooding my nervous system with panic.

And stress? MS loves stress. It’s like pouring gasoline on inflammation. Within hours of a spiral, I’d feel it. Heavier fatigue, sharper pain, brain fog so thick I’d lose words mid-sentence.

Something finally clicked for me. My body can’t heal when it thinks it’s under attack. 

Healing happens in safety. In calm. When my nervous system can actually exhale.

Why I’m Not Pushing Positivity

I tried the “think positive!” approach. It felt fake. My brain knew I didn’t believe “Everything is amazing!” when I could barely get out of bed. The forced optimism just added another layer of failure.

That’s when I learned about neutral reframing. You’re not pretending everything’s fine, you’re just offering your brain a different pathway. A gentler one.

Every time you choose the reframe over the catastrophe, you’re literally building new neural connections. With repetition, those new pathways get stronger. The old ones fade. Not instantly. But gradually. Like training a muscle.

Want to Try This With Me?

Pick the phrase that shows up most for you, the one that feels automatic, like a reflex.

Write your reframe on a sticky note. I have one on my bathroom mirror, and one on my coffee maker, because apparently I need the reminder before caffeine.

When you catch the old phrase creeping in, pause. Read the reframe. Say it out loud if you can. You don’t have to believe it fully yet. You just have to practice offering it as an option.

That’s it. One phrase. One week. Let’s see what shifts.

❤️ Amanda

chronic illness, healing, Health, mental health, MS

The 6 Words That Became My Prison

Amanda, walkamyelinmyshoes

‘I’ll never be the same again.’ I said those six words three weeks after my MS diagnosis, not knowing I was building a prison.

The moment I first said those words, I was trying to feel excited about all the growth in my garden. Instead, I was terrified and overwhelmed with all the work that growth was making for me. 

My body felt like I’d been squeezed through a pasta maker and dragged behind a pickup. I couldn’t find the energetic, motivated person I’d always thought myself to be. (I’d actually always struggled with fatigue but I had a close personal relationship with Denial.)

I repeated variations of that sentence daily for 3 years, swirling in the fog of confusion and grief a life-changing diagnosis brings.

Saying ‘I have MS’ is just a fact. But it’s the way I said it, with defeat, with finality, like it was my entire identity. That’s what kept me stuck. There’s a difference between ‘I have MS’ and ‘I AM sick.’


Your brain builds neural pathways like garden paths. The thoughts you repeat are the ones you “walk” most often. Over time, those paths become smooth and automatic. For better or for worse.

Because your brain’s job is to keep you safe, it takes your repeated thoughts as truth, so whatever you tell it often enough, it starts to believe and look for proof.

When you start choosing new, healing thoughts, you’re simply walking a new path. With practice, your brain learns to follow it naturally.

One morning I woke up thinking ‘I don’t think I can get out of bed today.’ So I didn’t. I spent 14 hours scrolling my iPad, feeling like a burden, spiraling into anxiety about the future. The next morning, before my brain could start its doom loop, I thought ‘What’s one small thing I can do?’ I watered the plants. That was it. But I wasn’t in bed all day.

When I worried that people thought I was faking because I could walk, or that I wasn’t ‘sick enough’ to be on disability, the vertigo would kick in and my ears would ring. Not exactly at that moment, it took some reflection to realize the connection, but the symptoms weren’t just random examples of my body betraying me. It was a self-fulfilling prophecy in action.

Staring at my garden one day, trying to squash the overwhelm at the weeding and pruning calling to me through the fatigue, I watched the hummingbirds flit from one buddleia to another. I envied their boundless energy and wished I could breathe it in.

Then I wondered what it would be like to be an animal and not have the overthinking, negative-biased human brain. That flipped the switch, and I thought, “What if I shift my perspective?” 

Adjusting the lens of how I looked at things, from “I’m so sick and tired of being sick and tired” to “What can I do to help myself heal?” was the game-changing move that stopped the carousel of terror and started a true healing path.

These days, when I catch myself thinking ‘I’ll never…’, I pause. Sometimes I can shift it immediately: ‘Not never. Just not today.’ Sometimes I can’t, and that’s okay too.

That garden I was standing in when I first said those six words? I learned to tend it in a different way. Some days with energy, some days from a chair, sometimes just watching the hummingbirds from the window. But I was no longer terrified of the growth, because I was part of it.

The prison was never MS. It was the story I told myself about MS. And I’m the one who holds the key.

What six words have you been saying to yourself? Write them down. Just notice them. That’s where the door starts to open.

❤️Amanda

What path are you creating with your thoughts?
Want more simple, free healing tips? Join my weekly email list for short, practical emails – no spam, and no eyeball swirling GIFs included. You’ll receive my free MS Mindset Reset Guide, and join a like-minded, supportive community of women determined to go beyond managing symptoms and begin true healing. Click the button and join us today!
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chronic illness, healing, MS

Finding Hope in MS: 2 Healing Tips

Amanda, walkamyelinmyshoes

Remember that feeling when you first heard ‘MS’? Like someone just handed you a puzzle with no picture, half the pieces missing and said ‘good luck!’

The overwhelm is real. Medication, or not? Can I still work? How do I tell people? Will I end up in a wheelchair? And on and on. The carousel of terror you never signed up for.

 My 23 year diagnostic odyssey ended with a neurologist saying, “Based on your MRI and history, you have MS. Take these (handing me a 10 pound stack of pharmaceutical information) and pick one.” That was the first time I understood the impulse to throat punch someone.

Here’s what I wish someone had whispered in my ear during those early, scary days. “MS isn’t the end of your story, and it’s not your identity.”

Here are 2 simple things that brought me back from the edge. Healing isn’t easy, but it is simple.

2 Game-Changing Tips

Tip #1: Why I Talk to Trees Now

In the early days, when it was hard to even get out of bed, the thought of going outside was as appealing as a quick hike up Mount Everest.

Eventually I dragged my butt out the back door and sat in a chair, staring at the garden. It felt like punishment. At first.

Watching the birds fly overhead, the leaves dance in the breeze and the flowers slowly open their faces to the sun, woke something up in me. Something that became a major ingredient in my healing journey.

The more time I spent outside, the better I felt. Something about just being there started restoring my energy.

Barefoot in the grass or on a beach, sitting under trees. On cold, rainy days, even staring at houseplants.

Sometimes sitting in my car at the beach or a park with the window open.

When all else failed, on ‘bed days’, I’d search “nature meditation“ on YouTube. Tim Janis is a great channel and doesn’t get interrupted by ads.

Trees don’t judge if you cry at them. Trust me, I’ve tested this. Those tree huggers are on to something. I wrap my arms around a tree and whisper my thoughts. Call me crazy, but the tree whispers back. And my nervous system downshifts and relaxes.

Actionable step: Aim for 5 minutes outside daily.

First thing in the morning is best and will improve your sleep. More time is obviously better, but doing it daily is the most important.

Start small so you can achieve it every single day. That’s how you make progress.

Tip #2: The Vertigo Solution I Didn’t Believe Would Work

Stress is the mortal enemy of MS. Living with MS is very stressful. It’s a vicious cycle.

MS stress amplifies everything. Things that wouldn’t have bothered you before, pluck those stress strings and have you vibrating (literally) with unwelcome negative energy.

How do you take back control? You pay attention to a process your body does automatically, adjust it and use it to your advantage.

In my last post, I talked about baby belly breathing. You’re born with the ability to breathe deeply and oxygenate your body properly. As you grow and get exposed to the inevitable stress of being human, you lose that ability.

Early on, I struggled a lot with vertigo and light-headedness. It’s like living in a fun house, minus the fun. When I learned to breathe properly and added specific breathing techniques, the vertigo loosened its hold over time and I stepped out of the fun house.

Actionable step: 4-7-8 breathing

  • One hand on your belly
  • Inhale through your nose for 4 counts, feel your belly expand
  • Hold for 7 counts
  • Exhale through your nose for 8 counts
  • Repeat for 3-5 rounds

Healing is possible

This is just the beginning of your journey. I know you want to feel better right now. Find that well of patience inside, practice consistently and be kind and compassionate with yourself. I promise you will start to see results.

Last week, I was hugging a tree in the park, releasing some difficult emotions. A woman walked by and winked at me. I walked past her a few minutes later, now she was hugging a tree with a huge smile on her face. What once felt a bit silly, now feels like wisdom.

What’s one small thing you’ll try this week? Let me know in the comments.

You’re not alone.

❤️ Amanda

Want more simple, free healing tips? Join my weekly email list for short, practical emails – no spam, and no eyeball swirling GIFs included. You’ll receive my free MS Mindset Reset Guide, and join a like-minded, supportive community of women determined to go beyond managing symptoms and begin true healing. Click the button and join us today!
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chronic illness, mental health, MS

Big feelings after MS diagnosis: What I’ve learned in the decade since

Amanda, walkamyelinmyshoes

First, relief. An answer to the strange symptoms that quickly consumed my life. See, I’m not making it up. It’s not all in my head. Except, uh, it was.

In no time, relief morphed into terror at the possibility of a very bleak future.

Three days after diagnosis, I found myself in the grocery store, choking on sobs as I reached for the Honey Nut Cheerios. How to make friends and influence people.

Everything felt impossible. Like I was walking through mud. Breathing took all my energy. My brain was on strike. The neurologist handed me a two foot tall stack of pharmaceutical pamphlets textbooks and said, “Pick one.” Not. Helpful.

I was on my own. So I figured it out. S-l-o-w-l-y. Let me help you get there faster.

My Post-Diagnosis Survival Kit (also handy for general life, especially these days)

1) First lifeline: Stepping outside for 5 minutes, and staring at the sky.

There’s something about the wide expanse of the sky that calms the swirling thoughts and grounds you in the reality that the planet’s still orbiting the sun and life keeps moving forward. 

Even when it feels like your life has crashed down around you.

2) Game-changer discovery: A simple breath technique that works. Baby belly breathing and extended exhales.

First let out a big exhale. This tells your body you’re not in imminent danger and immediately calms down the nervous system.

One hand on your belly. Inhale through your nose for 4 counts, feeling your belly expand.

Exhale through your nose or mouth for 6 counts, feeling your belly deflate.

Five minutes of deep belly breathing and your thoughts stop swirling. Your body shifts into a lower gear.

3) Five minute rule: This became my rule for healing that changed everything. You can do anything for 5 minutes, even on the hardest days. Walking, cleaning, cooking, crying… anything.

Once you prove it to yourself through consistency, it automatically makes you want to do more. That’s how change happens.

Small Shifts, Big Changes

Healing isn’t about giant leaps. And you can’t just heal your physical body. It’s an ‘all hands on deck’ situation of body, mind and spirit. It requires patience, self-compassion and consistency.

But healing is possible. Even if MS is incurable.

The mindset shift: From fixing everything to just doing one tiny thing.

Some days you have to congratulate yourself for moving from the bed to the couch. Or brushing your teeth. Or choosing an apple instead of the cheesies calling your name.

It all counts, and it adds up. 

What I’d Tell My Newly-Diagnosed Self

Your overwhelm is temporary.

You don’t need to figure it all out today.

MS doesn’t get to write your whole story.

You’re already braver than you know.

Your One Next Step

Three micro-actions:

  – Step outside for 5 minutes

  – Try five baby belly breaths, in for 4, out for 6

  – Say one kind thing to yourself

Start with just one.

Remember: You’re not alone in this.

I see you. You got this!

❤️ Amanda

Want more simple, free healing tips? Join my weekly email list for short, practical emails – no spam, and no eyeball swirling GIFs included. You’ll receive my free MS Mindset Reset Guide, and join a like-minded, supportive community of women determined to go beyond managing symptoms and begin true healing. Click the button and join us today!
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chronic illness, gratitude, Health, life, mental health, MS

From Chaos to Calm: Your 3-Minute Reset After MS Diagnosis (or anytime)

Amanda, walkamyelinmyshoes

Everything just changed. Your mind is spinning.

You want relief. You want answers. You want to feel better now.

After the relief of finally getting my diagnosis, an answer to my 23-year medical mystery tour, the overwhelm took over. My first neurologist handed me the stack of medication information and told me to pick one. Yeah, I fired him.

I didn’t know where to start. So I did what most of us do. I looked for answers everywhere else.

There’s so much information out there. Diets. Protocols. Supplements. Exercise routines. Many people claim to have the one “best” way to handle your life-changing diagnosis.

But here’s what I learned. You’re the only one who can decide what your healing journey looks like. And when you’re caught in a storm of information and emotion, you can’t hear your own wisdom. You need to find ground first.

MS can make you feel powerless. But creating calm, even for three minutes, is something you can do right now.

Here’s your reset:

Set a 3-minute timer.

Place one hand on your heart, the other on your belly.

Take slow breaths into your belly, the way a baby breathes. The way humans breathe naturally before stress teaches us to hold our breath in our chest.

Close your eyes or look at the sky.

Notice one thing you’re grateful for or hopeful about.

That’s it. Do this once today. Nothing more.

This isn’t about fixing everything. It’s about giving your nervous system permission to settle. Because healing can’t happen in chaos.

Do you have a quick reset to share? Let me know in the comments.

I see you. You’ve got this.

❤️ Amanda

Mindset shift: Chaos to calm.
Take 3 minutes to breathe and stare at the sky.
Want more simple, free healing tips? Join my weekly email list for short, practical emails – no spam, and no eyeball swirling GIFs included. You’ll receive my free MS Mindset Reset Guide, and join a like-minded, supportive community of women determined to go beyond managing symptoms and begin true healing. Click the button and join us today!
Get Your free MS mindset reset Guide