life, mental health

Learning to Be

The world has stopped. The unthinkable has happened and we’re in crisis mode, trying to get our heads around this ‘new normal’.

I’ve been here before.

No, not exactly like this, obviously. But almost five years ago, my world stopped when I finally admitted I couldn’t teach anymore. I’ve been adapting to my new normal ever since. It’s been a bumpy ride, but there have been many surprising blessings as well.

Learning to be. This is a big one. We are so inundated with messages telling us we need to be doing something all the time. There’s a culture of busy-ness, where the more you’re doing is like a badge of honour. When you have a chronic illness, that’s not really an option because the fatigue, among other things, is so killer that You. Just. Can’t.

So you spend a lot of time at home, sitting around, isolated, without a whole lot of options for entertainment. Sound familiar? I’m sure it’s a new experience for most healthy people, and it can be uncomfortable just sitting in your own skin sometimes. Or maybe that’s just the MS. 🤔

But just being, instead of always doing can be a wonderful opportunity to get real with yourself and figure out what’s really important. We’ve been conditioned to believe we need to be working, be productive, be entertained, be adventurous, be travelling , be consuming, be socializing.

We’ve forgotten that sometimes it’s important to just BE.

When you stop doing and sit quietly with yourself, your mind has space to process. This is why meditation has become so popular. But you don’t even have to be that organized about it. I’m not knocking meditation in any way, I’m just suggesting that you pay attention to whether you take any time during your day to stop doing and just BE.

Staring at nature is my go-to for times when I need to stop and be for awhile, even if it’s just out the window, or the nature channel on TV. I guess that’s technically doing something but the mental health benefits outweigh any slicing of that proverbial hair.

We’ve been running on the societal treadmill for so long that doing nothing, just BEING is a difficult thing for many people right now. I get it. Like with anything though, a shift in perspective can change this strange situation we’re finding ourselves in, into an opportunity to examine our values and decide if we really want to go back to the “old normal”.

As much as I miss teaching, I am grateful every single day for my many blessings. Learning to be comfortable with just being and not doing all the time has helped me enormously in accepting my new normal. I hope it helps you too.

Just be.

Hummingbird in flight feeding
Look what you can see when you stop doing for a few minutes. Just be.
Photo credit: Amanda L. Callin

❤️ Amanda

life

Christmas: pressures and perspective

So, I was ‘voluntold’ yesterday by my youngest that ‘we’ were providing the vegan gingerbread house kit for her and a friend for the class contest on Friday. Ummm… okay? 🤣

I love that she knows I love to bake so assumed I’d be happy to do it. Happier that it doesn’t occur to her that I’m carefully pacing myself at the moment so I can make it through the holidays without the MonSter rearing it’s ugly head too far. One of the perks of an invisible illness when it comes to your kids, at least when you can…

But it’s always smart to remind yourself, chronic illness or not, that it’s not worth pushing beyond your limits. Everyone owes it to themselves to take time for self-care, to take things off their plate when necessary and to ask for help sometimes.

The whole season should be about being cozy and spending low-key personal time with your people. Let go of the consumer, commercial side of it and focus on what matters. You can only do what you can do, and good enough is good enough. Otherwise, you…

The best thing I’ve started doing since I finally got decent running shoes is getting my butt out the door every weekday for a 20 minute walk. Sometimes it’s a few minutes more, but never too much because in the past I would get back into ballet or yoga and go too hard, setting myself back several steps. So now I’m the tortoise not the hare, and I find I look forward to my walk each day and it sets me up well for the day ahead. There are days when 20 minutes doesn’t get me too far…

But I’ve only missed one day, when the wind was too much for my sensory issues, and then the last couple of days when I needed to brave the crowds to finish the Christmas shopping. Now I will get out there every day if possible because I know it’s the single best thing I can do to make it through our busiest Christmas season ever, and enjoy it.

Finally, chronic illness or not…

Depending on how things go, I may post one more time about the vegan gingerbread house. If it’s a total fail, maybe not, so…

Wishing you all a restful, joyous holiday and a healthy, peaceful New Year.

❤️ Amanda

MS

Raw

I need to know

Do other MSers feel it too?

A sudden rawness

Burning

Tingling

In the tongue

Lips

Palms of hands

Soles of feet

Eyelids

MS?

Is it the myelin being destroyed

By my own cells?

Most uncomfortable

Anxiety-inducing

Go away now.

life

Endings and beginnings

He’s off. Settled. Installed at university – across the country.

I’m always a proud Mama, and never more so than when my son was accepted into one of the top universities in Canada. The fact that it’s four provinces (4029km/2504miles) away, is something I have been digesting, with a smile on my face, for months.

I’ve just returned from a four day trip to get him organized and set up in residence. It was one of the most wonderful, but more emotionally challenging experiences I’ve had in motherhood.

He’s doing exactly what he should be doing, moving into the next phase of his life with the skills, values and independence I’ve worked to instill in all my children.

But hugging him goodbye and having to leave him there, no matter that I know he’ll do great and be just fine, was almost as hard as when I had to leave him in the OR for surgery on his broken leg when he was six.

I sucked it up (mostly – poor Uber dude) until I hit my hotel room. It was only in writing out all the fantastic details of the day in my journal that I got a handle on the Snuffluffagus tears. Writing is therapy.

I flew out so early the next morning, I was hardly conscious. I was one of the last to board the plane, psyched to have an aisle seat near the front. The middle seat was empty and I thought I had it made, despite the huge manspreader in the window seat. (wtf is up with that???)

Then a young mother boarded with her 9 month old baby boy, and smiled at me apologetically. I jumped up to let them in, remembering well my many trips with young kids and the obvious looks of horror from fellow passengers, then realized the father was there too. I offered to move but they said he was in the middle seat at the back of the plane. Yeah – not happening.

I was happy to help her out and thrilled to hold the little monkey. He was such a happy guy, with a shock of blond hair, huge blue eyes and a ready smile.

Then a three year old boy walked up the aisle and spotted the baby. He stood and gazed at him with such fascination for ages, it was adorable.

Do you see the pattern here? Okay, Universe!!!

I didn’t let myself say the usual, ‘it goes by so fast’, ‘appreciate every moment, even the most frustrating ‘, ‘you never get this time back’.

I didn’t want to be that person.

It’s all true though, but you can’t really understand it until you live it. Like everything in life.

I lost it a bit a couple of times on the way home, but walking up to the house was really weird. He’s not just out, he’s away.

So sniffling away in my bedroom, I pulled out my phone, and there was a text from my boy.

I thought you should know, I had tomatoes for lunch.

😂😂😂 Thank god for technology.

And perspective – he’s only away at school, he hasn’t moved out! Home for a visit in two months!

This is not the end of anything, it’s the beginning of everything.

❤️ Amanda

chronic illness, life, Poetry

Voodoo Doll: MS Awareness

Huge stakes pierce my heels

Burning red hot fire

Millions of minuscule knives

Flay the insides of my feet

A giant vegetable peeler slices off

The bottoms

*

I’m sorry to those I squashed

Those I looked down upon

From any temporary high ground

I believed I held

I am your voodoo doll

And you will have your revenge

Over and over

*

The burning piercing spreads

To hands, up legs, then forearms

Who needs to work on abs

When they stay contracted constantly

Holding in the moans

And the nausea from the pain?

*

I’m sorry to those I squashed

Those I looked down upon

From any temporary high ground

I believed I held

I am your voodoo doll

And you will have your revenge

Over and over


I don’t really believe that my chronic illness is a matter of revenge, but it’s an easy trap to fall into when I’m trying to pretend all is well but the pain is overwhelming. I think of myself as a kind person but I know in my past immature, insecure life I wasn’t always the best person I could be. However, we can only go forward and try to do better.

Kindness is the answer.

❤️ Amanda