Health, life, mental health

Love. Not Fear.

View at Medium.com

It has been far too long since I’ve published anything but this article is important enough to share. If you allow your fear to spiral out of control, that lowers your immunity and makes you more susceptible to getting sick.

Stay informed, but focus on connection and gratitude. Turn off the screens and get outside. Wash your hands, and stay home unless it’s essential to go out. Stay safe and healthy out there!

❤️ Amanda

chronic illness, Health, life, MS

Tips for staying healthy in cold and flu season

The germs are a-coming!

As we approach colder weather and months spent mainly indoors, all the bacteria are getting ready to party, waiting for those unsuspecting souls who will help spread the news and invite those snot-making, cough-producing little buggers into your home and mine.

Having a chronic illness means that a simple cold can knock you out for weeks, if not months, instead of days. People may consider me a germaphobe now but having suffered from pseudo-exacerbations – not a real relapse but just as much fun – after getting the sniffles makes me wary of those invisible little suckers that are everywhere.

Before The End, my years working in the germ factory, aka an elementary school, honed my skills at preventing the spread of colds and viruses, beyond the obvious of washing your hands well, and frequently. So here are my top five tips for staying healthy and preventing the spread of colds and flu viruses this winter.

1) Don’t touch your face.

This may sound strange but if you start paying attention, you will notice how often you touch your nose or mouth. No matter how meticulous our own hygiene, other humans with filthy habits are everywhere, touching everything. Becoming aware of this will cut down on an enormous amount of germs that you let in without even thinking about it.

2) Change hand towels and dishcloths daily.

Excessive? I don’t think so, not when all the germs that come into the house are being wiped off hands and surfaces by those towels.

3) Don’t shake hands.

Yes, people sometimes react like I’ve offended them when I say “I’m sorry, I don’t shake hands in flu season.” That’s okay, I look at it as a public service announcement. Shaking hands is an outdated practice from a time when humans weren’t quite so crammed together. I don’t need to touch you to tell you that I’m pleased to meet you.

4) Use your sleeve or wear gloves when touching surfaces in public.

When opening doors, pushing elevator buttons, or using stair railings, wear gloves or use your sleeve. Sometimes it’s not possible to use your sleeve and you might feel strange wearing gloves inside, in which case don’t touch your face and wash your hands asap. Ultimately though, who cares really if someone thinks you’re a pretentious nut job if you wear gloves indoors – you won’t be snarfing into tissues and hacking up a lung. Seems like a better deal. Maybe we can start a new trend?

5) Wipe doorknobs and light switches weekly.

Starting in bedrooms and working your way through the public rooms, to the bathroom, the front hall and finally the front door(inside and out), give them all a good wipe every week. You don’t need to use the nasty chemical antibacterial crap either. A solution of 3/4 vinegar, 1/4 water, 20-25 drops of tea tree oil and 10-15 drops of lavender oil will do the trick nicely. There are some ‘green’ products that come in handy wipes and if that makes it easier, then go for it. I always use one to wipe down the shopping cart at the grocery store.

A few other things that help me through a potentially snotty season are:

* Oil Of Oregano – if I feel that I’m getting sick I put 5-10 drops under my tongue and wash it down with LOTS of water. It’s an acquired taste.

* Zinc – a tickle in my throat and I start downing the quick dissolve zinc tablets.

* Infrared sauna – if you haven’t tried one, I highly recommend it. I know lots of MSers can’t stand heat so it’s not an option for everyone. I only stay in for 15-20 minutes but it’s a very different, less oppressive heat than a traditional sauna and I can feel it zapping those nasty buggers while I’m in there.

I am not a health professional in any way but I have found these things have helped me avoid getting sick for the last two years. Of course, it could be that my immune system is on overdrive all the time and addicted to my myelin so other germs never have a chance. Not worth taking the chance.

One final public health announcement: If you do get sick, PLEASE STAY HOME! There is a misguided belief in our capitalistic society that it’s a badge of honour to show up at work even when you’re at death’s door. Or to send your kid to school when they’re dribbling booger snakes. Really you’re being an asshole.

Caveat: Single parents reliant on a single pay check are not assholes in this instance. This is where we need to reconnect as communities and help each other out as family, friends and neighbours. Everyone needs a support system.

Noooo! We need to get over this mentality.

I used to say to my students, there are lots of things we should share with each other, germs are not one of them.

Do you have any good tips to share for staying healthy? Let me know in the comments.

Stay healthy, my friends. Have a wonderful week!

❤️ Amanda

Health, life, writing

Happy New (school) Year!

Back to school. Three words that can cause dread or excitement, depending on the person.

For some students, school is a happy place filled with friends, new experiences and the wonder of learning. For others, it’s an institution with rules to make them toe the line, to think and behave in a way that is unnatural to either the way they were born, the way they were raised, or both. Not to mention the social aspect that can be a major stumbling block for so many.

For some parents, the return to school is a welcome relief from either bored, whiny (not in our house, thank you) kids or from toting them to (not to mention paying for) various summer camps while they still have to work their full-time job. For others, back to school means unwelcome early mornings, too many forms and payments, stressed-out kids and the end of freedom from an overbooked schedule.

It’s not surprising that as a child, I loved going back to school since I eventually became a teacher. Having spent the majority of my life adhering to the school calendar, I always find September to be a reflective time, a time of new beginnings and renewal, hope and expectations for new goals set.

For me, it is a much more effective time to consider where I want to be a year from now, than the over-marketed dead-of-winter celebration of New Years Eve that most people I know don’t celebrate anymore. There is something about the cooling of the air after the heat of summer, new stationery (yes I’m geek 🤓), and even a few new duds (so not a shopper) that make me ready to set some manageable goals for the year/season ahead.

Everyone knows that the trick to succeeding at your goals is to not pick too many. There are a million things I could do to improve myself and my life, even though it’s already pretty fantastic. Like I said in my last post, pacing yourself is super important when you have a chronic illness. I also believe strongly in the KISS (keep it simple stupid) principle in all aspects of my life, especially because of brain fog. It’s all about priorities.

So, my simple and hopefully reachable goals for the next four months. Oh yeah, I like to do it short term because so much can change over a year and also – Christmas! 🎄☃️🎅🏻 I always start thinking about Christmas in September, because I’m a bit of a Christmas freak and I love to make crafts as gifts, much to the chagrin of my extended family. 🤣🤣🤣

Health – Being as active as possible.

1) Work my way up to 6 sun salutations at least 5 days a week. Currently, I’m at four several times a week but consistency is my problem.

2) Get my ass back to ballet class. I have to stick with the beginner class this time though. Last time, I went with the level of my (ancient) training, thinking that I would pace myself. Ha! I went too hard and burned out in a few months.

Work – Embrace my new career as a writer. I had to resist putting those two words in quotations. Getting there.

1) Write 5000 words a week until I finish this first draft, which I hope to have done long before Christmas. When I put it away to percolate for a while, I may haul out my first ‘accidental manuscript‘ and see if I can sort out the structure, now that I understand it a bit better. I’m hoping to get a lot of work done at the writing retreat I’m going to in 10 days – very excited about that! Also, sign up for NaNoWriMo in November.

2) Continue posting here, connecting with people and learning more about writing and the chronic and invisible illness community. I’m coming up on my 3 month anniversary of my first post, which is hard to believe. Best thing I’ve done in the last three years!

Personal – Pacing myself and connecting with others.

1) Continue to stay connected closely with my husband and children, regardless of how focussed we all may become on our individual projects. This goes for my extended family and friends too. I’m not great at in staying in touch with my outer circle on a regular basis but I have a wonderful, understanding support network that understands that, for which I am forever grateful.

2) Continue to reflect daily on everyone and everything I have to be thankful for. This is an easy one! 😊

So there we go, I’ve put my goals out there for all to see. If someone had told me I would be sharing myself publicly like this a year ago, I would have scoffed. They say it’s the best way to make yourself accountable, though. I’ll keep you posted!

What about you? What are your hopes, dreams, goals for the back to school new year?

Red roses against a blue sky

Thanks for stopping by! Have a wonderful week!

❤️ Amanda

Health, MS, Partners/Caregivers

5 Tips: How to converse with a ‘foggy’

Brain fog causes issues with processing and comprehension. Here are some things to remember to help conversations flow more easily when you’re speaking to someone with brain fog.

Memory issues

1. Don’t change the subject.

It’s a very wavery tightrope to collect your thoughts and articulate them clearly when your brain is drowning in cotton. When you change the subject mid-conversation, often we can’t retrieve the original thought that just might have been world-altering.

2. Don’t ask questions until we’re finished speaking.

Again, any interruption throws the train off the tracks so even if you think being an attentive listener means asking questions, hold back. It can be a ridiculous feeling of success to process and articulate a complete thought when your brain doesn’t want to cooperate so please allow the time and space for that to happen, without interrupting.

3. Don’t talk to us when we’re trying to complete another task.

Multi-tasking is the gold standard for success these days, everyone is SO BUSY! Brain fog allows a person to only complete the simplest of tasks, one at a time. Please don’t try to chat if they are trying to cook or even tie their shoes. Every task takes so much mental (and physical) energy, it is impossible to split the focus.

4. Speak clearly and slowly, don’t mumble.

It takes as much effort to listen and process the message receiving information when Charlotte has spun her web so thoroughly in your noggin. Again, allow time and space for processing and for Pete’s sake, speak loudly and clearly. But not like we’re morons. Thanks.

5. Accept a grunt as a polite response.

Sometimes carrying on a conversation is more than we can handle. Don’t take it personally. It’s sort of like when toddlers ‘hit the wall’ – “Complete meltdown approaching, back away, BACK AWAY!”


Brain fog affects many people living with chronic illness. For many, it never goes away, it just changes in its severity. I hope these tips help your next conversation with a foggy to proceed without too many hiccups.

Do you have any tips to add? What is the most difficult aspect of conversing when you’re suffering from brain fog?

Thanks for stopping by! Have a great week!

May the spoons be ever in your favour

❤️ Amanda

Health, life, MS

Anxiety : Depression’s partner-in-crime

Walking the tightrope of ms relapse prevention and symptom management while juggling life stress, heat intolerance, sensory overload, the ogre of depression and its craptastic partner-in-crime, anxiety.

We spent an incredible weekend in Vancouver, going to see the Psychedelic Furs, a band I started listening to in 1985, the year I met my husband. Nostalgia aside, they were maybe not the most exciting live band but we had a whole second show play out in front of us. It ended with a very eccentric, obnoxious man throwing his drink in his ex’s face, spraying all of us nearby. Oh, the drama.

Going to Vancouver usually stresses me out with all the traffic, the dreaded George Massey tunnel, the smells, the noise, the people everywhere. The chaotic energy of a big city is exhausting but it’s worth it to spend a night away watching live music with my husband.

This time traffic was mellow, even on a weekend at the height of summer. Everything fell into place beautifully everywhere we went so there was little stress and the monster was quiet so I felt pretty great, all things considered. Happy hour cocktails at the Cactus Club may have helped a bit, too. 🍹

Even the drive back out to the ferry, because we left the city early and went to check out the new mall, Tsawwassen Mills, was a fun, stress-free adventure. I’m not a mall rat and typically think a mall is a mall is a mall but they have done a very thoughtful job of incorporating First Nations artwork and unique elements that make walking around the ginormous space a mall experience unlike any I’ve had before.

First Nations metal wolf sculpture

Part of the joy of being an island-dweller is the hurry-up-and-wait experience of riding the ferry. I’m mostly patient and can amuse myself pretty easily but we all know how hot this summer has been in the northern hemisphere. Sitting in a truck on the end of a man-made jetty covered in concrete, full of metal cars and huge semi-trailers is a special kind of torture for every traveller.

Heat sensitivity is a common symptom of multiple sclerosis. Being the annoying mofo that it is, my body can tolerate heat or cold just fine most of the time. Until it suddenly can’t and all hell breaks loose. I think my thermostat’s broken.

So, my sweater is hanging off the sun visor shielding my body from the sun, doors and windows all open to catch the cool ocean breeze, all is well. Then the wind dies, the sun’s still beating down on me through the side window and a mushroom cloud of heat wafts up from the pavement.

Knock knock. Who’s there?

Hot, too hot.

Brain frying, can’t think

Panic starts, ears ringing.

Hello Anxiety.

Anxiety is another special gift the monster has given me in the last few years. It is closely related to depression in that they share the all-encompassing feeling of doom. The only thing that makes it controllable is knowing that it is a result of the damage in my brain, it is not real.

On the tarmac, I ended up going into the relative cool of the marketplace, to be faced with all the other overheated humans seeking relief.

Hello Sensory overload.

Tune it out. Blinders on. Focus on stationary objects.

Jewelry. Oh, pretty. Slowly inspect.

Cool down. Calm down.

Sea salt scrub. 50% off. Sure!

Hot, too many people.

Stuffy. Loud. Too much.

When I got back to the car, we had the bright idea of using the air-conditioning. Oh, sweet relief! I don’t love idling a car for any longer than necessary but when it comes to being either environmentally responsible or saving my brain and body from total meltdown, I will be unapologetically selfish. Please remember this if you’re tempted to judge someone for idling their car in the future. It can be a case of life or death for some people in this kind of heat.

People always worry about the dogs but, you know, humans.

Just after we boarded, a camper van got stuck partway on to the ferry, delaying the other cars and ultimately, our departure as they eventually had to back off the ramp. I could feel the spinny, bubbly feeling beginning again in my head that happens when my thermostat’s awry and I overheat. Then, anxiety prickled its knives that I was stuck in this hot car with no air moving for who knows how long and idling your car on the ferry isn’t an option, so no air conditioning.

Sensory overload or not, up I go just until the boat starts moving. Normally we stay in the car the whole time to avoid the crowds as I’ve always had enough after two days in Vancouver but again my thermostat was in control. I go up the stairs straight into the line-up already building for the buffet.

I quickly veer myself into the small hallway by the chief steward’s office and prop myself against a window, watching the hordes of people boarding and lining up. I try to enjoy the enthusiasm of the young Japanese tourists on a ferry for the first time. Their excitement is adorable and appreciated.

Then they swarm around me to look out the window and take pictures. Of the ugly piers.

Over my head.

Okay. Breathe.

They’re gone.

Another group.

Wait. Breathe. The ferry will be moving soon.

One window further over. Look out at the water.

See the diamonds dropped by the sun

Sparkling all over the water.

A bird, diving.

When will the boat move?

Look back at the growing noise.

Buffet line has sealed off my exit.

Swallow down the fear.

Irrational.

Line will move. Boat will move. Time will move.

Please move!!!

Breathe.

Just breathe.

I am only grappling with one tentacle of the octopus of anxiety. Many people are paralyzed in their lives, unable to function because they are crippled by the many facets of this mental monster. Yet again, there is still such a stigma about mental illness. I wanted to share a small glimpse into what the experience is like for me, just to open the discussion and share information to spread awareness.

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Thanks so much for stopping by. I always appreciate any comments or insights about my posts but if you’ve taken the time to read it at all, I am honoured, and I appreciate it so much.

Have a wonderful week!

❤️ Amanda