I need to know Do other MSers feel it too? A sudden rawness Burning Tingling In the tongue Lips Palms of hands Soles of feet Eyelids MS? Is it the myelin being destroyed By my own cells? Most uncomfortable Anxiety-inducing Go away now.
Tag: poem
Voodoo Doll: MS Awareness
Huge stakes pierce my heels Burning red hot fire Millions of minuscule knives Flay the insides of my feet A giant vegetable peeler slices off The bottoms * I'm sorry to those I squashed Those I looked down upon From any temporary high ground I believed I held I am your voodoo doll And you… Continue reading Voodoo Doll: MS Awareness
Not all hugs are loving: MS awareness
It starts with a stitch A few deep breaths Then you're knitting my ribs together With barbed wool The front Then the back Swirling into my abs Then my lower back A corset of pain The cat the cow The cat the cow Stretching every way for relief Breathe Distract It's just a physical thing… Continue reading Not all hugs are loving: MS awareness
FEAR
First of all, I have to acknowledge the overwhelming positive support I got for my last post from my various ms ‘families’. For an introvert that overanalyses every social interaction (yeah, I think they call that social anxiety 🤔 ), it took me a long time to put myself out in cyber world and open myself… Continue reading FEAR
Guilt
I don't consider myself a poet but some things, emotions particularly, seem more accessible when I let the words flow freely and simply. I wrote this poem about guilt last year. Guilt is an emotion I strenuously fought against but I encountered it full-force when I stopped working. Happily, a year later I'm more at… Continue reading Guilt
Walk a Myelin* My Shoes 