Health, life, mental health

Love. Not Fear.

View at Medium.com

It has been far too long since I’ve published anything but this article is important enough to share. If you allow your fear to spiral out of control, that lowers your immunity and makes you more susceptible to getting sick.

Stay informed, but focus on connection and gratitude. Turn off the screens and get outside. Wash your hands, and stay home unless it’s essential to go out. Stay safe and healthy out there!

❤️ Amanda

life

Christmas: pressures and perspective

So, I was ‘voluntold’ yesterday by my youngest that ‘we’ were providing the vegan gingerbread house kit for her and a friend for the class contest on Friday. Ummm… okay? 🤣

I love that she knows I love to bake so assumed I’d be happy to do it. Happier that it doesn’t occur to her that I’m carefully pacing myself at the moment so I can make it through the holidays without the MonSter rearing it’s ugly head too far. One of the perks of an invisible illness when it comes to your kids, at least when you can…

But it’s always smart to remind yourself, chronic illness or not, that it’s not worth pushing beyond your limits. Everyone owes it to themselves to take time for self-care, to take things off their plate when necessary and to ask for help sometimes.

The whole season should be about being cozy and spending low-key personal time with your people. Let go of the consumer, commercial side of it and focus on what matters. You can only do what you can do, and good enough is good enough. Otherwise, you…

The best thing I’ve started doing since I finally got decent running shoes is getting my butt out the door every weekday for a 20 minute walk. Sometimes it’s a few minutes more, but never too much because in the past I would get back into ballet or yoga and go too hard, setting myself back several steps. So now I’m the tortoise not the hare, and I find I look forward to my walk each day and it sets me up well for the day ahead. There are days when 20 minutes doesn’t get me too far…

But I’ve only missed one day, when the wind was too much for my sensory issues, and then the last couple of days when I needed to brave the crowds to finish the Christmas shopping. Now I will get out there every day if possible because I know it’s the single best thing I can do to make it through our busiest Christmas season ever, and enjoy it.

Finally, chronic illness or not…

Depending on how things go, I may post one more time about the vegan gingerbread house. If it’s a total fail, maybe not, so…

Wishing you all a restful, joyous holiday and a healthy, peaceful New Year.

❤️ Amanda

life

Crafts and chronic illness: A Handmade Christmas

As I said in my last post, crafts keep me sane and help me feel productive in my spoonie lifestyle. So, together with my desire to rid our household of plastic as much as possible, I decided to make the decorations for our tree this year. Oh, an important detail: Our youngest requested that I decorate the living room tree myself this year. She’s all about matchy-matchy at the moment.

Usually we have the schmozzle of family heirlooms on the tree, which is wonderful, and they love to tease me about being Monica from Friends when I encourage them to space out the ornaments. The little twerps have been known to clump all the ornaments as close together as possible, just to get a reaction. Too bad for them, I bite my tongue and stealth redecorate later. 😏

This year, the family tree will be in the basement where we spend a lot of time together, and will wait until our son is home from university to decorate. Upstairs, we’ll have a live tree and I will fully embrace my inner Monica when I decorate. Some of the ideas here may flop, or or I’ll choose to go another way, but here’s what I have so far.

Finger-knit and finger-crocheted Garlands

I only started using garlands on our tree the last few years. When I decided to finger knit the garland, I looked up how much I would need for a 7 foot tree. Ready? 63-70 feet!!! 🤗 1-3 feet per foot of tree, so there you go.

Off I went, finger knitting and crocheting approximately 80 feet of garland. Here’s hoping it doesn’t look ridiculous, but if it does I’ll turn them into something else.

Finger knit and finger crocheted garlands

Clothes peg stars

The clothes peg stars are all over the internet and I just loved the look of them. I made five of each colour; translucent, brushed silver, and rose gold. Then I added the herpes of the craft world: glitter!

Pompoms

My youngest and I had fun making pompoms with super soft, chunky yarn and the same white fluffy yarn I used to finger crochet the thinner garlands. We started off wrapping them around our hands and that worked fine. Then I found a rectangular piece of cardboard with a hole in the middle and it was even easier, and the pompoms became slightly more uniform. Fun to use for indoor snowball fights too!

Diy pompoms

Borax Snowflakes

This is a craft/science experiment I used to do with my first graders. The correct formula is 3 tablespoons of borax per cup of hot water. I was doing these in a big bucket though, and could only do two of the twelve 6-inch silver snowflakes or three of the fifteen white 4-inch snowflakes at a time. This took some commitment as the water has to be reheated each time, and the crystals take overnight to form. You can tell I was free-handing the Borax because of the different degrees of crystallization. Measuring might be an idea.

Wire hanger Star

No wire hangers! Sorry, Mommie Dearest.

I got the inspiration for the star from here but did my own take by adding the yarn around the star macrame-like, a craft I learned from my Great Aunt Ede. Then I added cylindrical glass beads as well as regular round ones. I also kept the pompoms small, more because that’s what I had and I was determined not to spend more money.

How to attach? Not sure. I’ll have to Handy Mandy it. 🤓

So, my version of Santa’s workshop has kept me busy for the past few weeks. Getting crafty allows me to indulge in my Christmas obsession early, without buying into the commercialism.

We have the tree, the lights are on (that’s a whole other story), so I’m off to decorate. After a cup of tea – with a healthy shot of rum. Cheers!

❤️ Amanda

Have you gotten crafty for Christmas? Let me know in the comments. I’m always looking for new things to try!

MS

Raw

I need to know

Do other MSers feel it too?

A sudden rawness

Burning

Tingling

In the tongue

Lips

Palms of hands

Soles of feet

Eyelids

MS?

Is it the myelin being destroyed

By my own cells?

Most uncomfortable

Anxiety-inducing

Go away now.

life

Oh deer! Our July Garden

Despite the best efforts of mama deer and her two Bambis, our garden is going strong after four separate attacks.

Awww, so cute — until they decimate your plants and leave their turd raisins everywhere!

They found the one hole in the 15-foot hedges in the back, and feasted on our apple trees, lilacs, hydrangeas, tender gladiolus, petunias, sunflowers, clematis, alstroemeria and sweet peas. Most upsetting, they mowed down all my peas, new beans, and lettuce, stepping right into the raised beds and destroying seed beds I had just planted. They nibbled at the potatoes and the tomatoes too. Aargh!

Some semi-permanent deer fencing across the corner where she got in, as well as around my raised beds, and things are starting to recover. We also decided to use our back deck as planting space since we always choose to sit out in the garden. Now I can plant even more!

As long as she can’t climb stairs… 🤔

Anyway, here are some pictures of my healing place/our paradise in July 2019.

Dahlias – stunning and deer-resistant!

My favourite shady place to read and write. Or just be.

Monster marigolds that I planted from seed are taking over!

The corner where they got in, and the final frontier for the garden – until we get rid of the trampoline. Protected by Tiki. 😏

I really love this time in the garden when most of the major tasks are done for the moment and we can just water, maintain and enjoy. We plan to plant more dahlias, especially out front because the deer leave them alone, and they’re gorgeous. They lined our driveway when we lived in New Zealand, which is where we both fell in love with them.

Any other suggestions for deer-resistant, drought-tolerant perennials? Our front garden is so blah comparatively, and north-facing so not as much fun. Any recommendations very much appreciated.

Happy August!

❤️ Amanda